I’m a work in progress–much like this blog. So expect this “about me” to change as I do 😉
I’m an energetic person by nature living in a body that lacks energy. I’m a person of movement struggling with a body that fails to move in the ways I want it to. I’m a person who loves to be social who lives a fairly secluded life, quite reluctantly, on this couch.
Living with chronic, incurable, and rare medical conditions can be discouraging and lonely. When we share our stories and listen to the stories of others, we gain valuable insights that can bring encouragement on the darkest days, ideas for new treatment options, and primarily, feel a little less alone in our struggles. My life isn’t following my Plan A, my Plan B, my Plan C, or probably even my Plan X. But it’s my life and I’m trying to live it the best I can while struggling with Chronic Intractable Migraine, Familial Hemiplegic Migraine, the effects of two posterior fossa decompression surgeries for my Chiari Malformation, Postural Orthostatic Tachycardia Syndrome, PTSD, (likely) EDS, (undiagnosed) Chronic Fatigue, widespread pain, and some other yet unknown issue that has left a “pocket” in the artery that runs by my pituitary gland. It’s lonely, discouraging, difficult, and the only way I get through it is with a good sense of humor, the practice of living thankfully, the ability to connect with other people, and the fur-babies who keep me getting out of bed one day at a time. Of great encouragement of course, is my loving, understanding, and patient husband.
I’m the girl who loves to write and yet fails to do so for long periods of time. I intend to update this blog at least once a week, but with this failing body who knows if I’ll be able to stick with it.
And yes, I am a woman of deep faith, so if you stick with me here you may occasionally come across some of my thoughts on Scriptural topics, so feel free to skip those if you choose. My faith has helped to form my character and is part of who I am, but it’s not the only thing in my life that people can relate to and find encouragement from. Just sayin’.
If you would like, you could visit my old blog…..http://www.joyinthewaitingroom.blogspot.com/
The Lici Joy Project 
I came across your blog today. I have had days where it is too exhausting to shower. Your words resonate with me. You are inspiring, and I wish you well. Keep sharing, you never know who you are helping! Blessings to you.
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